BSACI is working with Imperial College London to establish a prospective UK Anaphylaxis Registry, supported by UK Food Standards Agency (FSA) and Food Standards Scotland (FSS), to collect data relating to unintended allergic reactions. The Registry is fully integrated into the existing European Anaphylaxis Registry Network for Online Registration of Anaphylaxis (NORA).
The UK Anaphylaxis Registry serves as a platform for clinicians to record details of anaphylaxis incidents and will enable us to collate data from across the UK to help provide a better picture of the type of reactions that take place as well as their frequency and geographic spread. Understanding more about accidental allergic reactions to food, such as the specific food causing a reaction, will help us better protect those with food allergies.
The Registry works with a two-step data collection process. The first is a case report form for completion by the health care professional where anonymous data relating to the allergic reaction is collected. The second step is a patient questionnaire which will collect additional information relating to symptoms and possible risk factors in an anonymous way from the patient after verbal consent is obtained by the healthcare professional and consequent electronic informed consent then obtained.
BSACI and other health care professionals are encouraged to register for access to the online platform, and then submit data relating to unintended allergic reactions occurring in adults and children, to both food and non-food triggers. To register as a contributor click here.
Once your account has been approved, you will receive an email with you User ID and Password which will give you access to the online platform. If you have any questions please email Dr Alessia Baseggio Conrado at firstname.lastname@example.org
Hardcopy paper versions of the Case Report Form and A&E Case Report Form are now available for download. These can be used to record case details on paper for later uploading to the Registry platform, where this is preferred.